Published on: 2/8/2018IST

Girl Born With Heart Outside Her Body

User Image Anuj Tiwari Last updated on: 2/8/2018, Permalink

This Girl’s Heart Beats Outside Her Body in Utterly Shocking Video

Pentalogy of Cantrell - Girl with Heart Outside Her Body
Pentalogy of Cantrell - Girl with Heart Outside Her Body

Russian born Virsaviya Borun who moved to Florida is no regular eight-year-old girl. Well, it has nothing to do with her shifting nations but her placement of heart. Yes, the girl has her heart beating outside her body. If you do not believe us about Virsaviya, you must see the utterly unbelievable video uploaded on YouTube with the title ‘VirsaviyaWarrior’. The little girl suffers from Pentalogy of Cantrell, a rare congenital condition, which has caused her heart to grow outside her body. Virsaviya’s intestines are also present outside her body because of the disorder, which occurs in an estimated 5.5 in one million live births. She first came to limelight in 2015 with her heart-touching story instantly going viral.

The 43-second long clip opens with Virsaviya Borun’s heart beating in and out of her chest. Every time, the girl giggles, her heart could be seen pushing out of the chest with a thin layer of skin covering it. She suffers from Pentalogy of Cantrell, which can cause potentially severe, life-threatening complications. She along with her mother moved to Florida from Russia in hopes of getting the surgery performed after hospitals in her country refused to operate. They believe the surgery involves a high risk, something which has been the cause of concern for doctors in Boston who have also refused to operate.  They cannot perform the surgery because of the “high blood pressure in her pulmonary artery”.

Virsaviya’s mother hopes her little girl will someday find a right treatment. Meanwhile, the determined girl is proud of her heart. In a short documentary on her, she was quoted saying to BBC, “This is my heart. I’m the only one that has this.” She is a “cheerful and talented” girl, and we got to see her radiant smiling face as she giggled in this video. According to her Facebook page, Virsaviya Borun enjoys “singing, attending art classes and making clay structures”. According to the DailyMail report, she loves Beyonce and is quite a lively girl. The doctors had told her mother that she would die shortly after birth but the lovely and determined girl is living eight years later on her own terms.
2/8/2018 | | Permalink